If you are a carer, you'll find information here about a wide range of services and facilities offering help and support in North East Lincolnshire and beyond, including some that give you time for yourself and a break from caring, i.e.:
- Carers support workers provide signposting, help and advice to carers.
- Local and national carers' organisations provide information on your legal rights as a carer and the benefits you're entitled to – and offer a wide range of local, confidential support.
- If you are caring for someone with dementia and need support, there are specialist nurses who work with family, carers and people with dementia.
- There is information, advice and support available for people who have a brother or sister with a disability or long term condition, and there are also organisations specifically for supporting grandparents.
You can find out about specialist holidays and short breaks for children and adults with learning difficulties or physical and sensory impairments.
A carer is someone of any age who provides or intends to provide care for a child, relative, partner or friend in need of help because they have an illness, disability, frailty or a substance misuse problem. The care provided may be personal, emotional or supervisory and is generally unpaid.
Carers in North East Lincolnshire have been working with a local artist and a production company, to produce a white board animation that raises the profile of carers and the issues carers face, along with the support available:
In England, millions of people provide unpaid care or support to a child, relative, partner or friend, either in their own home or somewhere else.
‘Caring’ for someone covers lots of different things, like helping with another person’s washing, dressing or eating, taking them to regular appointments or keeping them company when they feel lonely or anxious. If this sounds like you, you are a ‘carer.’
Many of us will become carers at some point in our lives. It is a natural part of a relationship or friendship to “help out” by doing a little bit more than usual if needed. Often, carers who take on these tasks ignore their own needs, and do not notice the increasing stresses and strains until it is too late and a crisis has occurred. If you are a carer, it is important to remember that you do not necessarily have to do everything yourself. In the sections below, we have included some information on support and local services that may assist you in your caring role.
A good first port of call is the North East Lincolnshire Carers’ Support Service which provides information, support and advice to all carers across North East Lincolnshire including:
- General information and advice
- Specialist Advice Service
- Emotional & practical support
- Carers groups and social activities
- Holistic therapies
- Training for carers
- Carers Emergency Alert Card
- The opportunity to be part of North East Lincolnshire’s “Caring Family”
WEBSITE - NEL Carers Support Service 01472 242277
Adult carers of adults
From 1st April 2015, the Care Act 2014 places carers on the same legal footing as the person they care for. This means that adult carers of other adults will be entitled to a carer’s assessment when they appear to have needs as a carer. Carers are no longer required to be providing regular and substantial amounts of care, nor do they need to request a carer’s assessment. There is now a duty to actively identify carers, and offer them an assessment if there is any appearance of need.
If the person you care for lives in North East Lincolnshire, focus adult social work or NAViGO can help you find the right carer support and you can ask them for a carers’ assessment. You can contact both of these organisations via the single point of access on 01472 256256
How might a carer’s assessment help me?
A carer’s assessment will look at the different ways that caring affects your life, and work out how you can carry on doing the things that are important to you and your family. Your physical, mental and emotional wellbeing will be at the heart of this assessment, and the outcome will be that you either are or are not eligible for support. Regardless of the outcome, the assessor will offer you advice and guidance to help you with your caring responsibilities.
When can I request a carer’s assessment?
You can ask for a carer’s assessment at any time. If the person you care for lives in North East Lincolnshire, regardless of where you live, you should contact the Single Point of Access on 01472 256256. If you don’t want a formal carer’s assessment but you are looking for advice and information about local support, you should contact the North East Lincolnshire Carers’ Support Service.
Does having a carer’s assessment affect my right to get carer’s allowance?
Not at all - having a carer’s assessment will not affect your right to receive a carer’s allowance.
The person I am caring for will not agree to a needs assessment themselves. Could I still be offered support as a carer?
You don’t need the permission of the person you are caring for to request a carer’s assessment. You are entitled to ask for one in your own right.
Does having a carer’s assessment mean I am being judged on the quality of care that I provide?
A carer’s assessment is about you and your wellbeing. It will consider the impact that caring is having on your life and what support might be available for you. Its purpose is not to judge the care that you provide.
Can I have a carer’s assessment if the person I care for does not currently get help?
Yes. If you care for an adult family member or friend who lives in North East Lincolnshire, and you feel like you need some support, you can contact the Single Point of Access on 01472 256256 for a carer’s assessment. If the person you care for lives outside of North East Lincolnshire, you should contact the council covering the area where they live to ask for a carer’s assessment. With the permission of the person you care for, you can also ask for an assessment of their needs. To find out which council covers your area, please see our 'Living at home now and in the future' section.
I share caring responsibilities with other family members/ friends. Can all of us have a carer’s assessment?
Everyone who gives unpaid care to an adult over the age of 18 and feels they have some need for support can request an individual carer’s assessment. These assessments do not have to be done together.
What happens if my needs change or if I need more support with existing needs?
If your needs change, you should request a carer’s assessment (regardless of how recently you have had one). If you need more support with continuing needs, our assessor will be able to discuss your situation with you and agree the next steps to take.
How often can I request a carer’s assessment?
There is no limit to the number of times you can request an assessment - we are required to consider any reasonable request for an assessment/ reassessment. The Care Act states that a reassessment should occur unless we are “reasonably satisfied that the plan remains sufficient, or the request is frivolous, or is made on the basis of inaccurate information, or is a complaint”.
What about parents caring for disabled children, or young carers who are under 18?
If you are a young carer (i.e. a carer under 18) or a parent caring for a disabled child, you have similar rights to assessment and support as adult carers caring for adults. These rights are covered by the Children and Families Act, however, not the Care Act.
The Care Act does state that if young carer caring for an adult or an adult caring for a child is likely to have care and support needs when they or the cared for child turns 18, then they must be assessed if there is “significant benefit” in doing so. The term “significant benefit” relates to the timing of the assessment, not to the apparent level of need. Therefore, if you are likely to have support needs as a carer you are entitled to a transition assessment if:
- You are a young carer caring for a person over 18, and you yourself are turning 18
- You are an adult with parental responsibility caring for a person under 18, and this person is becoming an adult (turning 18)
In relation to young people with special educational needs (SEN) who have an Education, Health and Care (EHC) plan the assessment should begin from year 9, but even without these the young person should be assessed when their need for care and support as an adult can be predicted reasonably confidently. This may be well before the year when they turn 18.
If the assessor decides that you have needs that meet the new national eligibility level they will discuss with you what support they can provide.
If your needs are not eligible, you will be given information and advice about other types of support that are available in your area. This may include putting you in touch with local charities or community organisations. Although there are several organisations supporting carers locally, the key local organisation supporting carers is the North East Lincolnshire Carers’ Support Service:
There is no charge for a carer’s assessment or any of the services delivered to carers. There may be a cost for some of the services that social services offer to the person you care for.
Carers Emergency Alert Card
In normal circumstances carers would have plans in place and people they could call upon to support the person they care for in their absence. The Carers Emergency Alert Card has been specifically designed to support carers who may have an emergency or crisis situation. Once registered, a carer will have peace of mind that professionals will be able to activate an emergency plan, if required. In an emergency causing the carer’s absence, this will ensure that support is put in place for the person they care for.
Who can register for the carers emergency alert card?
Carers who care for someone living in the North East Lincolnshire area can register.
Contact North East Lincolnshire Carers Support Centre 01472 242277
Support for carers of those with organic and functional mental health concerns through NAViGO
The Admiral Nurse and Carers' Support Worker service provides individual support to carers of those with Alzheimer’s/Dementia through the provision of advice, information and signposting, as well as an assessment of need and support services such as emotional and practical support and carers training. In addition there are a range of support mechanisms for all carers of those with functional mental health problems, including a monthly carers group, a carer drop in service at Your Place and a range of social activities/outings which are provided once per month.
1. Admiral Nurse Service
This service provides individual support to carers of those with Alzheimer’s/ Dementia – for more information please contact the team on Tel: 01472 302515
Admiral Nursing Direct Dementia Helpline - They can give you specialist practical and emotional support via their dementia helpline on the phone 0800 888 6678.
2. Carers Pop INS
North East Lincolnshire Care Plus Carer Support Workers
The service is for carers of:
- Older people
- People with a learning disability
- People with a physical disability
The aim of the service is to ensure that carers have support to enable them to maintain their caring role, to reduce the impact of caring on carers wherever possible and to support a carers to have a life of their own, for example:
- Participation in social activities
- Access to peer support
- Where appropriate, a break from caring
Carers can expect to receive:
- Regular contact from a carer support worker, i.e. telephone contact or home visit as required
- Emotional and practical support including support with benefit forms etc.
- Support to promote their needs, or an advocate to promote the carer’s needs if required
- A quarterly mail shot of information aimed at supporting carers
- Support with long term planning for the person they care for
- Support to register with the Carers’ Support Service and their GP practice
- Access to education / training/ carers activities such as outings or pamper sessions
- Support with hospital or GP appointments
- Referral to outside agencies
To receive support from the Carer Support Workers team the carer must be caring for a person with a disability or caring for an older person (aged 60 years and over). The carer must have received a carer’s assessment which identifies that they are eligible for carers’ services.
The Carer Support Workers also work closely with the North East Lincolnshire Carers Lead and the North East Lincolnshire Carers Support Service; they work in partnership with a wide range of other professionals and agencies as well, to ensure the needs of carers and the people they care for are met.
Carers Support Team, Queen Street Health and Wellbeing Centre, Grimsby Tel: 01472 571120
Support provided through the Alzheimer’s Society
Services4Me has a Dementia Portal. Please ensure you check this portal for a range of advice, information and guidance if you are caring for somebody with this condition.
The issues facing carers who care for someone with dementia or Alzheimer’s can be very different from those of other carers. These issues make it easy to ignore your own needs and to forget that you matter too. But it’s much easier to cope if you look after your own health and wellbeing and there is lots of support available. Remember, there are plenty of options to help you meet your own needs without compromising the needs of the person you are caring for. Taking a break will help you to relax and unwind, and to deal with your own feelings about the dementia.
Carers support is provided through various services; the below is a simple summary. For links to more detailed information, go to the Dementia Portal. Please also ensure you check the portal’s 'Support for living with Dementia' section.
Dementia Advisor Service
- Dementia Advisers will provide personalised information, advice and signposting services to people in the process of getting a diagnosis, or people moving from a diagnosis of dementia onwards, and any carers.
- Dementia Advisers support at some of the outpatient clinics weekly, to ensure that people with dementia and carers/family members are supported from early diagnosis.
- Dementia Advisers provide one to one meetings via pre-arranged appointments to discuss more complex or sensitive issues faced by carers and people with dementia.
- Talking point is an online support and discussion forum, and a place to ask for advice, share information, join in discussions and feel supported (www.alzheimers.org.uk/talking point).
Dementia Support Service - Dementia Support Manager and Dementia Support Worker
Dementia support is delivered by paid dementia support workers who work with people with dementia and/or their carers, to improve the understanding of dementia. The service will provide individualised information and support services that are separate from statutory provision.
CRISP (CARER INFORMATION AND SUPPORT PROGRAMMES) 1 AND 2
The Carer Information and Support Programme aims to improve the knowledge, skills and understanding of those caring for a person with dementia, by providing effective support and up-to-date, relevant and evidence-based information. The programme facilitates peer support and a shared learning experience led by trained Society staff and volunteers in a safe, accessible environment.
Memory Cafes are social events for carers and those they care for. For more information on the services provided by the Alzheimer’s Society please contact: 01652 680474 / alzheimers.org.uk, or ensure you check the Dementia Portal which lists all the available memory cafes within North East Lincolnshire.
Additional useful contacts and support groups:
The Alzheimer’s Society Provides advice support and information on their website athttp://www.alzheimers.org.uk/site/
The Dementia Café can be found at www.dementiacafe.com
For more information about Dementia Services please contact:
The Princess Royal Trust for Carers also has lots of information for Carers of people with Dementia.
Please contact them for information about Carers Support in your area
Telephone: 0844 800 4361
Fax: 0844 800 4362
Age UK North East Lincolnshire
Age UK North East Lincolnshire delivers a range of services, information, support and activities to people over the age of 50 and their carers provides:
- Local information
- Pop in cafe
- Luncheon Club
- Day trips, holidays and a range of activities
- Handy van
- Tradespeople list
- Toenail cutting service
- Information and Advice Service
- Products and Services
- Charity Shop
- Volunteering Opportunities
Young carers are children and young people who look after, or help look after, someone at home who has a long term illness or disability. This could be a parent, brother, sister or grandparent. Young carers help out in many different ways:
- Doing housework
- Going shopping
- Keeping someone company
- Helping someone get dressed or washed
- Listening to someone or cheering them up
If you are a young carer, you need to have time off from caring, time to do the things that other young people may take for granted like:
- Going to school
- Chilling out
- Having your own space
- Having fun
- Talking to someone
- Meeting other young people who care for someone
If you are a young carer yourself, you have similar rights to assessment and support as an adult carer, but they are covered by the Children and Families Act not the Care Act.
The North East Lincolnshire Young Carers Project provides various group work activities and workshops to support young carers including specific groups for males, females or siblings, and social and sporting activities. There is also a specialist support group for young carers who are supporting loved ones in palliative care.
Some young carers might need some extra time out for lots of different reasons. The Young Carer’s Project provides things like:
- Meeting in school for a chat
- Occasional outings
- Confidence building
- A listening ear
Information and advice
The Young Carer’s Project has lots of different information on illness, disability, children’s rights and other services that may be of help to a young carer.
Sometimes young carers need someone who can speak on their behalf and staff at the project can help with this.
The Young Carer’s Project can:
- Support a young carer
- Give a young carer the chance to have space and be themselves
- Give a young carer the chance to feel listened to
- Help to gain advice or access information if a young carer needs it
- Give help in practical ways so a young carer can spend more time with friends
For more information contact: Young Carers Project on Tel: 01472 323231
focus independent social work has a Memorandum of Understanding with the North East Lincolnshire Young Carers Project, to ensure joint working practises that identify and support young carers.
If you are a parent or an adult with legal responsibility caring for a disabled child, you have similar rights to assessment and support as adult carers of adults but they are covered by the Children and Families Act, not the Care Act.
If the person you are caring for is about to reach the age of 18 years, you will soon be an adult caring for another adult; this means you are able to get a ‘transition assessment’, which will let you know whether you or the person you are caring for are likely to be eligible for support under the Care Act.
There are a range of services available to support parent carers and those they care for, including:
North East Lincolnshire Children's Disability Service
The Children’s Disability Service can provide you with information about services and more specialist groups that can offer support without the need for an assessment. The North East Lincolnshire Council has eligibility criteria to access certain services, for which an assessment is needed. They undertake assessments of need, and parents/carers of children with disabilities can ask for an assessment if the universal services available are unable to meet their needs. Following the assessment, a support plan will be agreed with the child and family; this may include direct provision of services via a direct payment. The support plan will be reviewed regularly, with emphasis being on promoting inclusion, meeting identified outcomes and supporting the family as a whole.
If you wish to know more about what support is available for a child or young person with additional needs please contact the Children’s Disability Services on 01472 325607.
Common Assessment Framework (Children’s CAF)
A CAF is a Common Assessment Framework that works in partnership with families in difficulty, and agrees a multi-agency support package to help them. These difficulties may include:
- A family member needing help with drug problems
- A child/ young person not meeting their developmental milestones
- A child/ parent/ carer having a health issue
- A child or young person not attending school
- A parent/carer needing general help looking after a child / young person
- A child / young person having behavioural problems
- Family life generally being a struggle and the family requiring help to get back on track
The CAF is a standardised approach to conducting assessments of children’s additional needs and deciding how these needs should be met.
Family Information Service
The Family Information Service provides an accurate, up to date, impartial and free child care and family service directory for families and children ages 0-19 years old. You will find a Family Information Service Worker in local children’s centres on a regular basis.
For more information around childcare, services or activities for a child with additional needs contact the Family Information Service on 0800 18 303 17 or email email@example.com
Children’s Assessment and Safeguarding Service (CASS)
This incorporates a multi-agency safeguarding hub (MASH) and is staffed with professionals from Social Care, the Police, Health, Education, Family Support and virtual partners. The service is able to promptly and effectively gather information from each agency, which allows professionals to decide the most appropriate responses to children’s individual needs.
If you have any enquiries or if you have any safeguarding concerns to report please contact 01472 325555.
Short Break Service (SBS)
The SBS provides short breaks to children aged from 0-18 years who have a disability, and their families. The service has a wide range of options and can support families in a number of different ways. For more information contact 01472 325641.
There are a range of regular and bespoke services for those families that need it. Each child and family is different, so the short break is designed to meet their unique aspirations and needs.
Specialist short breaks are accessed following a referral and assessment by social care.
If you would like to request an assessment, you can make a referral to the Children’s Disability Service on 01472 325607
Depending on the needs of the child and family, the following can be allocated as a short break support service:
- Residential care - an overnight provision that offers home from home care
- A Short Break service - this can be in the home, an outreach service, sitters, overnight care or access to a caravan and short break houses
- Foster carers for both day and night care, provided in a residential family home setting
- A Care4all chalet for children with complex needs
- Domiciliary care and support within the family home
Sleep Solutions - volunteer parents supporting parents of disabled children.
Representatives from Sleep Solutions are available at an informal drop in, providing extensive knowledge and experience in solving sleep issues and general everyday problems that life with a child with additional needs brings; they also act as a signpost to other services that families may require. Meetings are held every last Wednesday of the month at the North East Lincolnshire Carers Support Centre. Contact Sleep Solutions Tel: 07530314434
North East Lincolnshire Transition Service
The term “transition” is often used to describe the process of moving from childhood into adulthood. It is a challenging time for most young people and their families, but is significantly more so for young people with additional support needs.
If the young person you care for already has a social worker from children’s services, this worker will talk to you about responsibility for the young person’s services transferring to adult social services, and what this will mean in terms of assessment for services and a new care plan.
The aim of the transition workers is to ensure that young people and their parents and carers are given relevant information at the most appropriate time to support them through the transition period. The Worker’s role is to attend school reviews, and advise the young person and their carers about what services are available in the future from Adult Service and how to access them.
From September 2014 some young people were able to access support through an Education, Health and Care (EHC) plan; this plan is in force until they are 25.
EHC plans are for children and young people who have a special educational need that cannot be met by support that is usually available in a school or college. Children and young people may continue to have support workers and keyworkers to help them make decisions right through their school and college careers.
For more information:
- Contact the Transition Team on 01472 320450, or alternatively email
- Talk to your teachers, tutors and support workers
- Get in touch with your local transition team or local authority
- Get in touch with your local Parent Participation Forum (Tel: 07583474892, email firstname.lastname@example.org ,Facebook: North East Lincs Parent Participation Forum or Follow on twitter: @NELPPF)
What does the team do?
The role of the Transition social worker is to attend school reviews and advise the young person and their carers about what services are available in the future from Adult Service and how to access them.
From September 2014 some young people were able to access support through an Education, Health and Care (EHC) plan until they are 25.
EHC plans will be for children and young people who have a special educational need that cannot be met by support that is usually available in a school or college. Children and young people may continue to have support workers and keyworkers to help them make decisions right through their school and college careers.
For more information contact:
- Transition Team 01472 320450 or alternatively email Chs-transitionService@nelincs.gov.uk
- By talking to your teachers, tutors and support workers
- By getting in touch with your local transition team or local authority.
- By getting touch with your local parent participation forum on Telephone: 07583474892, email: email@example.com ,Facebook: North East Lincs Parent Participation Forum or Follow on twitter: @NELPPF
The NSPCC project offers a family support service for local families. They work with parents and carers, where domestic abuse has been a factor in damaging relationships, and offer one-to-one direct work with children recovering from the experiences of violence or abuse within the family. They also work with children whose parents misuse drugs and alcohol. For more information contact 01472 320450
Parentalk deliver parenting courses which are tailored to meet individual needs. For more information contact 01472 501220
FLAG aims to provide recreational activities for children from age 5-21 years+ who have a range of disbailities and special needs. For more information contact 07944627352
Family Action Support Team (FAST)
The Family Action Support Team (FAST) are a group of specialist health professionals, who supply a specialist service for families with children with attention and behavioural difficulties, including Autism Spectrum Conditions (ASC), Attention Deficit Hyperactivity Disorder (ADHD) and other complex needs, aged 0-11 years. For more information contact the Family Action Support Team at the Molson Centre, Kent Street, Grimsby, North East Lincolnshire, DN32 7DJ on 01472 325040 or email firstname.lastname@example.org.
Community Children’s and Nursing Department of Family Service
The team consists of a number of experienced children’s nurses and nursery nurses who provide care for patients, from neonates up to 18 years old, with a range of medical and surgical conditions. The team also has a number of specialist staff including ADHD, Diabetes, Epilepsy and Substance Misuse nurses. The team is located at Community Children’s and Nursery Department of Family Service, Diana Princess of Wales hospital, Grimsby. For more information contact the team on 01472 874111.
St Andrew’s Children’s Hospice
The Hospice offers relaxed homely surroundings where privacy and dignity are valued. The main aim of the hospice is to improve the quality of life for the children and young people accessing it, by bringing fun into their daily routines through the provision of specialist medical and nursing care. St Andrew’s Hospice also offers extensive support to parents, families and carers. For more information contact 01472 350908
There are a range of routes by which carers can register their views - the three most pivotal spokesperson groups are the NEL Carers Forum, the User and Carer Independent Forum and the NEL Parent Participation Forum.
North East Lincolnshire Carers Forum
The Carers Forum is carer-led and has representation from carers of older people, carers of those with learning or physical disabilities, carers of those with drug and alcohol misuse issues, carers of those with mental health concerns, carers for young people and also former carers. The Forum plays a key role in the planning and development of local services and the promotion of issues affecting local carers.
All are welcome, and the Forum is always interested in expressions of interest from potential new members. It thrives on a diverse mix of participants, from a range of backgrounds and with a variety of experiences. Meetings are held monthly, on a Friday morning from 10am to 12 noon at the Carers Support Centre, 1 Town Hall Square, Grimsby. For more information about the Forum or becoming a member, or to contact them with a carer’s issue you seek to raise, please call the Carers Support Centre on 01472242277
North East Lincolnshire Parent Participation Forum
NELPPF is a collective voice for parents and carers, offering guidance and support on caring for people aged from 0-25 years. The Forum ensures that parents’ views and experiences influence the development and improvement of local services. The forum supports parents, grandparents and foster parents of children and young people with learning difficulties, complex health needs, rare disorders and genetic conditions, physical and hidden disabilities, mental health and sensory needs, challenging behaviour and those children who haven’t yet received a diagnosis.
If you would like more information or would like to get involved with the forum Contact us on the directory listing above.
The Tertia Trust is a charitable organisation which is a countryside based facility providing holiday accommodation for groups of children and young people and adults who have an additional need or disability.
For more information contact 01472 812378 / 07881887602/ 07760184376
Cruse Bereavement Care
This service offers:
- One to one bereavement support
- Support groups
- Friendship groups
When you wish upon a Star
Their aim is to make magical memories which a child and their family will remember for a lifetime. Granting a family’s wish enables the family to have a truly amazing time, forgetting about hospital routines, doctors’ appointments and treatments that have become a daily occurrence. It allows the family to smile, laugh and enjoy life. For more information contact 01472 827100
For further information and advice there are a range of services listed within the Services4Me directory; some of these have been listed below.
This service will visit a property daily and walk/ feed a pet in the owners absence. There is a charge for this service. Call for fees.
The Cinnamon Trust is a national volunteer service who can visit peoples homes or 'foster' pets, supporting people who are in hospital or care.
The Care Act 2014 states that the Local Authority has a duty to protect a person’s property and belongings, if they go into residential care or hospital and there is no one else to provide this protection. This includes pets in instances where there are no family members, friends, neighbours or anyone else to provide care for the animal. The individual will have to pick up the costs in most instances. If you need this service please contact focus independent adult social work by clicking the link, or call 01472 256 256
The Patient Advice and Liaison Service (PALS) is an opportunity for you to let us know what it’s like to receive NHS services as a patient, relative or friend. It offers you the chance to provide comments, compliments or raise concerns about the services you have received and helps the Trust to ensure that high quality, responsive services are available.
PALS is a free, confidential service available to offer help, advice and information on NHS services and is designed to help patients, carers and staff get the best out of what the NHS has to offer.
North East Lincolnshire Clinical Commissioning Group (CCG) has a dedicated PALS team dealing with matters relating to Primary Care Services in the local area. These include those NHS services offered from your GP Practice, Dental Surgery, Pharmacies (chemists) and Opticians and all Adult Social Care Services.